Best Death Possible (part two) – A Daughter’s Mission

The Difference A Doula Makes

An experienced Death Doula is someone familiar with many faces of death. While death is universal in its presence, it is individual in its experience. In my situation, a Doula would’ve been outside the grief circle, someone who could hold space for me as I expended my energy fighting for my mother. He or she would be able to offer perspective and guidance to spark ideas like bringing my mom’s personal items into the hospital, taking pictures, and bringing in music. A Doula would’ve been grounding for me.

It all happened in a week; Tuesday to Tuesday. When my mom was admitted no one suspected she wouldn’t be coming home. It was too fast for any of us to catch up, we only had a week; but that week will be with me the rest of my life.

We think of Death Doulas, or End of Life Doulas or even hospice as being appropriate only when death is imminent. Our most important work, however, happens long before that time. I chose to refer to myself as a Sacred Attendant, simply because that is what it feels like to me – attending the Sacred. Acceptance of death needs to be woven throughout our lives. It is not a final chapter of our story, but more like a character in the background without the knowledge of its time of arrival, nor the circumstances of it. Conversations about death cannot be reserved for some imagined time in the future when death appears imminent. They also need to include more than just the ideal circumstances because that just isn’t probable. Weaving death positive awareness into things like birthday celebrations, traumatic events, or illness could help remedy experiences like ours.

Thing 6 I’d change is doing a death plan. That first night when she said was scared, I would’ve stayed at the hospital. I would’ve pulled out a notebook and written down all the things she would want at her funeral. I would write a letter she’d dictate to whomever she wanted. I would’ve asked what songs she wanted at the service and what readings she wanted. I would’ve updated her living will with Health Care Representative (Proxy) designation. I would’ve asked her important questions regarding what she wanted to leave behind for all of us. I wouldn’t have hesitated to discuss this because we didn’t think it was time.

As a result of my experience with my mother, and with so many others, I created LIFE’S Book, an opportunity to create a death plan and so much more. Completing something like this with my mother would’ve not only established her wishes, but it would’ve been a bonding time for us. It would’ve also provided some guidance for others who didn’t know what to say while visiting. My mother could’ve asked them to simply pick up the binder and pick a page.

The Gift Of Time

Working in hospice I saw the Gift of Time in action. In a death denying society, the Gift of Time is bestowed upon those who chose to acknowledge time for letting go and embrace it. Peace comes with the embracing of death. Understanding that it is no longer a time to fight against the disease or circumstance, but to fight for magic in the last days. It is here that the term ‘good death’ was coined. A death free from suffering and in the comfort of their own home or home-like environment, surrounded by friends and family.

However, there are so many other types of death happening at any given time, don’t they deserve magic too? People die in car accidents, from falls in their homes, from assaults, and from sudden illnesses like stroke or aneurysms. Where are the good deaths for these people? Where is the dying-specific emotional, spiritual, and soul support for these folks? And what of those who lie down to nap one day and never wake up? Where are the goodbyes for their families? Their last words? And what of those who live alone with no one to ‘surround’ their bedside and care for them in their own home? What of them? Where are their good deaths?

They say there are no do-overs in life, and yet I see Life as one big do-over. Every day I get the chance to do things differently than the day before. I learn from my past experiences, I do not view them as insufficient or lacking in any way. The things I wished to do differently led me right where I am today, offering my support to others to reduce these events, by having conversations earlier than ‘imminent’. By doing this differently, I am honoring my mother’s death.

I was just getting my feet wet in the local community network groups talking about dying and death and…

Then CoVid19 Hit

The deathbeds now are even more sterile and are missing most or all family and friends. Fear of death hangs in the air like grey clouds in the Michigan winter sky. Still there is no acknowledging it. No preparations. No magic moments within conversations. Not even while quarantined together have there been conversations about death wishes. There’s just been blaming, conspiracy theorizing and more denial.

What’s emerged is a grief crisis. Compounded complicated grief where before there would be straightforward grief. On top of losing loved ones, we are losing our traditions for grieving. No matter your spirituality, religion or culture every aspect of grieving has been affected. Everything from not being able to be at the bedside to hold a hand, to not being able to have a funeral, with a million things in between.

This results in bereavement counseling being more important than ever. A counselor or a group to hold space to offer comfort and support. There will be more turbulent feelings. More uneasiness. More anger. More regret.

We will shortly be coming upon the first death anniversaries and the grief crisis will hit people unexpectedly. How we honor those anniversaries will be most important and if we do it right, will spark new traditions by creating meaningful ritualistic ceremonies to honor that date. We can only hope that by the time the first of the death anniversaries from this pandemic time roll around that the pandemic has subsided enough to allow more ritualistic ceremonies.

This is something I am preparing. This is something most end of life consultants are preparing.

My Mission

Ask 100 people what their idea of a ‘good death’ is and statistics say that 80 of them will say ‘at home surrounded by family and friends’. Some might even choose a facility with a ‘home-like environment like a hospice house, surrounded by family and friends’. Perhaps because they don’t want their family to have to live in the place where they died, or maybe they do not wish to burden their loved ones with caring for them. Whatever the case most people will not say ‘in a hospital’ and yet that is where 60% of deaths take place.

Why?

Some of it is due to death phobia. The medical community, in particular, has a hard time considering death, as was evident with my mother’s team. They are taught that death is an enemy to fight against at all costs. That cost is too great however, when it robs people of precious time with loved ones.

My mission is to offer the ‘best death possible’ for everyone. None of us can change the circumstances surrounding our death or that of our loved one. However, within the scope of that circumstance we can offer the best death possible.

The best death possible means embracing the circumstances as they are and doing it ‘your way’. It doesn’t mean giving up, so much as it is giving in to the flow of life. I have had the privilege of witnessing many magical life-changing moments that took place at a bedside. I want to bring that to anyone who wants it.

Unlike a hospice referral, to employ a Death Doula there is no need for a terminal diagnosis and 6 months natural life expectancy prognosis. The decision rests solely with the individual or family to initiate at any time. It can be initiated years before the actual death, making preparations, having conversations, and creating legacies. This starts building a relationship with someone who is then familiar to you at the end of life, providing all that much more comfort.

Embracing a best death possible philosophy provides opportunity for patients and families of trauma victims the same Gift of Time as hospice patients and families. It offers the same post-death follow up and support as well. It offers something more than what has been offered to date. A Sacred Attendant or End of Life Doula isn’t meant to replace Chaplains or Social Workers, it is something additional that offers a broader blanket of comfort care to a patient and their families. The service isn’t paid for by insurance or Medicaid/Medicare, so it isn’t restricted by regulations for reimbursement. The Attendant is free to provide whatever non-medical service is right for the individual and the family unit, and to provide it as long as necessary. She or he is not limited to a ‘justified’ one hour visit once a week.

Think what peace of mind this service could be to a son who lives 1,000 miles away from his mother who has dementia and lives in a facility. That he can have someone trusted to be there as many times a week as he wants.

What comfort it could be to a daughter from out-of-town to have in-town support as she lovingly cares for her father in his home.

What clarity it could bring a family whose members all seem to be on different pages.

What a difference it would make in the hospital to have compassionate end of life support available to individuals with sudden illness or decline, or traumatic injury and their family units.

And what of this…what if hospitals offered this service to family units right now, BECAUSE of CoVid protocols and restrictions? Why not give families something to replace a small bit of what has been taken away? It’s the right thing to do.

The services of Death Doulas, End of Life Doulas, Sacred Attendants, etc… will be unique to the individuals that provide them. In overview terms, they provide non-medical support to clients and families. Specifically, they might make a well-timed phone call or text; Be a visitor who is comfortable sitting in silence; Ask just the right question at just the right time; Or offer a listening ear you are not afraid to bend. These are the tangibles every End of Life Doula (EOLD) might offer. The innumerous intangibles are impossible to list here though because they are less about doing and more about being.

Peace Be With You…And May You Be Peace

If you or anyone you know feels they would benefit from this service please speak up to your doctors, your medical team or locate your nearest End of Life Doula through the End of Life Collective https://collective.round.glass/End-of-Life/about or the National End Of Life Doula Alliance https://www.nedalliance.org/ or reach out to me personally at healingritesofpassage@gmail.com or via the contact form on this site.

Interfaith Ministry

“I’m not religious. I’m spiritual.”

I have heard this more often than not in the past 15 years. It is how I’ve described my own Faith system for more than 30 years now.

And it is exactly why my compulsion to serve in a spiritual role led me to my recent induction as a First Responder Chaplain.

When my daughter was born 27 years ago, I sought a church that would meet my/our spiritual needs in a broader capacity. I enjoyed the ritual and community of church, but not the dogma. My search went on for years as I researched and explored many different faith systems.

Along the way, one thing became clear – spirituality resonated with me, religion did not.

I grew up in a very Roman Catholic household. My mother’s brother was a missionary priest stationed in the Amazon and their two sisters were School Sisters of Notre Dame nuns. My uncle would say mass in our living room when he was home. It is here that I developed my love of ritual, I’m sure of it.

I went to a Women’s Catholic liberal arts college where we attended mass either in the lounge in our pajamas or in the beautiful chapel and full of dancing, singing and poetry.

After college I attempted to find that same sort of relaxed, inclusive, interactive atmosphere, to no avail. Studying other religions, philosophies and ways of life not only enabled me to expand my knowledge and understanding, it also enabled me to collect rituals, beliefs and practices that resonated as True for me.

I learned how similar all religions are in their core teachings, and how much of what we know as organized religion was appropriated from nature religions and Eastern philosophies.

For my own spiritual fulfillment I found solace in the nature religions with added appreciation of Eastern Philosophies.

In 2003, I became an ordained Minister in the Universal Life Church, because I wanted to offer an alternative officiant for anyone identifying as ‘spiritual, not religious’.

Since that time I have offered what I refer to now as Interfaith Ministry. While the dictionary defines ‘Interfaith’ as “relating to or between different religions or members of different religions,” I do not. That same dictionary defines faith as follows: noun -1 complete trust or confidence in someone or something -2 strong belief in God or in the doctrines of a religion, based on spiritual apprehension rather than proof.

I believe Faith goes beyond the boundaries of religion.

People can have faith in one another, in God, in the Universe, in Jesus, in a Creator, in Yahweh, in Muhammad, in Buddha, in Life, and in themselves. Faith is not reserved for those who find solace in religion. Faith is what we call the system of beliefs a person holds. Period. Thus, interfaith is relating to or between different faith systems that may or may not include religion.

So, it is here that I landed in order to offer spiritual support to any person in need. I can as easily sit and read the Bible to a non-practicing Catholic woman, as I can read The Good Book to a Humanist, as I can read from A Course In Miracles for New Age believers, as I can read poetry and prose for those more secularly minded.

More than a few times I’ve been in a situation where chaplaincy services were offered to me and I regretted accepting them. I am not a fan of having other people’s beliefs imposed upon me, but that is exactly what happened. There was no room in the conversation for exploration and true processing of my feelings and emotions in that time of suffering. I found no comfort in their words and their beliefs. I found myself shutting down and saying whatever I could to get them to leave the room as quickly as possible.

So I set out to provide actual interfaith, nonjudgemental spiritual support sans agenda. I wanted to provide what I couldn’t seem to receive from anywhere. Perhaps it is my social work training, or maybe it’s my innate nature, but in my mind spiritual support is supposed to provide comfort. Comfort does not come by disputing a person’s belief system, unless the belief system itself is creating the suffering.

I have attempted to serve in a more official spiritual capacity for many years, however most roles are Christian based and require Theological training (heavily Christian) which I have not chosen to pursue. So, when I met a woman who talked about just becoming a First Responder Chaplain my ears perked up and I enrolled into the very next training.

The training was definitely geared towards Christianity but because of it’s 501(c) status, they could not refuse training to a non-Christian. In addition, I received no ill treatment because of my different belief. In fact, it was clear that they respected my different faith system and saw where I could provide support that they were uncomfortable providing. Win/Win. That said, I will tell you there were things that I felt were imposing and I let that be known.

My intention is to serve those who

  1. have followed a solo spiritual path
  2. are at a crossroads, in celebration or in crisis
  3. in need of guidance, support or ritual within their framework of faith
  4. and find themselves without a spiritual advisor.

To provide this service to, and in conjunction with, our First Responders to make death notifications or offer support in times of trauma is a privilege I do not take lightly. Not everyone who receives bad news or is involved somehow in a traumatic event will be comforted by traditional means.

I do not think that my perspective is unique in this, although I do think it is a well kept secret. To some extent there is still backlash experienced when one is vocal about not being Christian, so those who have alternative faith systems tend to be silent about it. However, more and more I have been privy to officiating rites of passage for groups with mixed faith systems and the experience is more beautiful than you can imagine.

The key to live harmoniously is to focus on what unites us, not on what separates and divides us. To close ourselves off from others because on the surface they appear to be ‘different’ doesn’t serve our highest good. Our highest good is served by creating brotherhoods and sisterhoods; by forging unimaginable alliances; by not investing ourselves in being right, but in being happy.

Happy people don’t do harm. They don’t seek to judge. They don’t seek to impost their beliefs on another. They don’t seek opportunities to convert others to their way of thinking and believing. Happy people recognize the happy in others. Happy comes in all shapes and sizes.

Chaplaincy, Spiritual Guidance or whatever else you name it, needs to be about one thing…holding the Space for Light to enter. That Light might be the breath in your body, the love in your heart, the God within you or the gods above you. It is not for me to dictate that to anyone. I take it as my solemn responsibility to hold a mirror up to reflect and magnify the Light in each person I serve, in whatever space I’m in, in whatever way brings comfort to those around me.

Peace Be With You